Item description for Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs by Elizabeth Griffin...
Overview For the multitudes of parents facing the challenge of raising a child with special needs, Fragile X, Fragile Hope affirms that they can survive the devastation of the unexpected diagnosis, the lost dreams, the confusion of treatment options, the sleep deprivation, the painful misunderstandings of friends and family, and that more than survive, they can find a way through this chronic stress and grief back to hope and joy. Elizabeth Griffin's honest book shows how parents can move from profound grief to embracing parenting a special needs child. Her son Zack is a Fragile X child with autistic tendencies. Fragile X is the most common known cause of inherited mental retardation and the most common known cause of autism. Further, whatever a person's life challenge or loss, Elizabeth Griffin's honest account speaks to anyone experiencing or seeking to understand depression, chronic stress, or unresolved grief, offering invaluable insight and abundant reasons to hope.
Publishers Description For the multitudes of parents facing the challenge of raising a child with special needs, Fragile X, Fragile Hope affirms that they can survive the devastation of the unexpected diagnosis, the lost dreams, the confusion of treatment options, the sleep deprivation, the painful misunderstandings of friends and family--and that more than survive, they can find a way through this chronic stress and grief back to hope and joy. Elizabeth Griffin's stunning, honest book shows how parents can move from profound grief to embracing parenting a special needs child. Elizabeth's son Zack is a Fragile X child with autistic tendencies. Like most families, the Griffin family's prayers were not answered with a cure for their child, but rather with the miracle of God's sustaining grace that carries them through each day. Elizabeth says, We experience so much joy in parenting Zack, despite our heartache over his limitations.... I have to admit that prior to Zack's entrance into my life, I viewed children with special needs as a tragic burden. I remember hearing a speaker on the radio say they wouldn't trade the experience of having a special needs child for anything. I thought, "Liar You're just saying that to be positive. You don't really mean it " Now that I've worked through the initial grief, anger, and fear that Zack's diagnosis brought, I have to agree with the man on the radio. There is a deep sense of love and joy that I've found in parenting a special needs child that I never expected, and that I am grateful to have in my life. Fragile X, Fragile Hope helps all of us grapple with our faith in the midst of adversity.
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Studio: Emerald Books
Est. Packaging Dimensions: Length: 8.98" Width: 6.08" Height: 0.29" Weight: 0.37 lbs.
Release Date Aug 1, 2004
Publisher Emerald Books
ISBN 1932096167 ISBN13 9781932096163
Availability 1 units. Availability accurate as of May 27, 2017 02:45.
Usually ships within one to two business days from La Vergne, TN.
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Reviews - What do customers think about Fragile X Fragile Hope: Finding Joy In Parenting A Child with Special Needs?
Very good and encouraging Jun 9, 2008
As the mother of a newly diagnosed child with Fragile X, I found this book very encouraging. It doesn't hide the difficulties of life with a child with special needs, but she reminded me that there is hope.
It was a fairly easy read. I think I finished it in one day.
Not Just for Special Needs Parents Nov 10, 2004
First off, I'm a bit biased as Elizabeth is my sister-in-law and Zack is my nephew. But even so, I was wasn't expecting to relate much with Elizabeth except in terms of family history and common experiences. I found however that my wife and I had shared many of the same frustrations, worries and anxieties with our own three kids, albeit on a much smaller scale. My point is that I think all parents and even would-be parents would get something out of this book. They will relate to much of Elizabeth's story and at the same time will gain valuable perspective on special-needs families. I'd also say this book is a must for any child care professional. Finally, it's a great read! Elizabeth has a very rich, dynamic and engaging writing style that draws you in. I could barely put it down and finished it in two sittings. Get a copy for yourself and one for a freind!